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Archive:
Lyme Policy Wonk
LYMEPOLICYWONK: 10 things you should know about new IDSA guidelines
04
DEC
2020
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LYMEPOLICYWONK: When decisions are foregone conclusions
02
DEC
2020
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LYMEPOLICYWONK: The pivotal role of patients in Lyme disease research
18
NOV
2020
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LYMEPOLICYWONK: MyLymeData, powered by patients, helps drive Lyme research
03
NOV
2020
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LYMEPOLICYWONK: The BMJ publishes our response to article dissing ILADS guidelines
09
JUN
2020
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How has COVID-19 affected you personally? Take our survey.
22
MAY
2020
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LYMEPOLICYWONK: Patients can’t wait, whether it’s COVID-19 or Lyme
23
APR
2020
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LYMEPOLICYWONK: Its members don’t treat much Lyme, but IDSA makes the rules
03
FEB
2020
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LYMEPOLICYWONK: Panel lacks balance, excludes needed voices
17
SEP
2019
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LYMEPOLICYWONK: Will patients be effectively represented on Working Group?
31
MAY
2019
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LYMEPOLICYWONK: Who represents Lyme disease patients? Why it matters.
13
MAY
2019
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LYMEPOLICYWONK: Get your copy of the MyLymeData 2019 Chart Book
02
MAY
2019
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LYMEPOLICYWONK: Patients want NIH to prioritize chronic Lyme research
15
MAR
2019
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LYMEPOLICYWONK: Take our survey on NIH’s Lyme disease strategic plan
27
FEB
2019
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LYMEPOLICYWONK: Why HIPAA privacy rules must not be eroded
12
FEB
2019
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LYMEPOLICYWONK: New blog helps interpret MyLymeData
18
JAN
2019
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LYMEPOLICYWONK: Abandon “Post-Treatment Lyme Disease Syndrome” label
11
DEC
2018
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LYMEPOLICYWONK: Using MyLymeData to Build a Research Engine
05
DEC
2018
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LYMEPOLICYWONK: The problem of misdiagnosis in Lyme disease
27
NOV
2018
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LYMEPOLICYWONK: “Chronic Lyme disease” remains a contentious term
12
NOV
2018
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LYMEPOLICYWONK: “Super responders” are key to personalized Lyme disease treatment
19
OCT
2018
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LYMEPOLICYWONK: What Lyme disease treatments are most effective?
10
AUG
2018
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LYMEPOLICYWONK: Lyme disease costs may exceed $75 billion per year
19
JUL
2018
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LYMEPOLICYWONK: What I told TBDWG about “two standards of care” for Lyme disease
21
JUN
2018
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LYMEPOLICYWONK: Is shared decision making the wave of the future?
15
JUN
2018
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