Focus – Opinions and Features

This is one of a series of guest blogs by people who have enrolled in MyLymeData. By Sandy Reyes Every young person envisions how their life will unfold. I was no exception. I had some dreams that were somewhat ambitious. I earned a degree from the University of Delaware, as the... Read More »

  This is one of a series of guest blogs by people who have enrolled in MyLymeData. By Silver Feldman When I was 13 years old and bedbound with pain, I made out a will—because I was sure I was dying. I had gone from being a healthy young woman to being barely able to move. I... Read More »

The latest issue of The Lyme Times looks at Lyme disease in the national scientific agenda. Our cover story explores “the democratization of science,” including the AAAS’s recent national session on the “wicked problem” of Lyme disease. Other topics... Read More »

The challenges facing the Lyme community are huge. Yet, working together, we’re making progress. In partnership with people like you, LymeDisease.org: * educates the public, the media, and lawmakers * publishes The Lyme Times * helps train physicians * supports... Read More »

  This is the first of a series of guest blogs by people who have enrolled in MyLymeData. By Sherrill Franklin My Lyme journey began in 2008. Ironically, a few days after placing tick repellent in our woods, I saw an engorged tick embedded in my hip. Having struggled through... Read More »

Last week, LymeDisease.org launched MyLymeData, a major research project aimed at collecting information that can transform the treatment of Lyme disease. Some people have questions about what MyLymeData is and how it will be used. The following is taken from the Frequently Asked... Read More »

LymeDisease.org today announced the launch of MyLymeData, a first-of-its-kind national patient-powered research project aimed at improving the quality of care for Lyme disease patients. The MyLymeData registry allows patients to pool their health information through a secure... Read More »

LymeDisease.org will soon launch a patient-powered research project called MyLymeData. It promises to be the largest study of chronic Lyme patients ever. Our latest issue of The Lyme Times explains all about it. You can read this issue online (for free) by clicking here. (Note:... Read More »

Lyme disease patients and advocates will demonstrate outside the Infectious Diseases Society of America’s (IDSA) Annual Conference in San Diego Oct. 9-10. All events will take place across from the San Diego Convention Center, 5th Avenue and Harbor Drive. (Right next to the... Read More »