Here’s what happened at the second meeting of the federal Tick-Borne Disease Working Group in Washington DC. [View the story “TBD Working Group Day 2 ” on Storify] Read More »
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Number one research priority for Lyme disease? Better testing.
12
DEC
2017
Press release: LymeDisease.org releases “Top 10 Lyme Disease Research Questions,” as federal government weighs options in fight against growing epidemic. The nation’s top research priority for Lyme disease should be finding a more accurate and sensitive diagnostic test. That’s... Read More »
HIV/AIDS legacy omnipresent at first TBD working group meeting
12
DEC
2017
David Michael Conner was in the audience yesterday at the first meeting of the federal Tick-Borne Diseases Working Group. He filed the following report for the Huffington Post. Another meeting will be held today. December 12, 2017 …To say that the legacy of the AIDS... Read More »
First meeting of TBD working group highlights Lyme patient perspective
11
DEC
2017
The first meeting of the federal Tick-Borne Diseases Working Group has now concluded in Washington DC. The emphasis was on the patient perspective. There will be a second meeting tomorrow (Tuesday, Dec. 12). Here is how LymeDisease.org’s Lonnie Marcum tweeted today’s... Read More »
Listen to Tick-borne Diseases Working Group on Dec. 11-12
08
DEC
2017
Meetings 1 and 2 of the federal Tick-Borne Disease Working Group will be held in Washington, DC on December 11 and 12. Members of the public may attend the meeting via webcast. The TBD Working Group was established by the 21st Century Cures Act in 2016. The law calls for... Read More »
Suing architects of Lyme policy, as task force meets to review it
07
DEC
2017
HuffPost, December 7, 2017: by Mary Beth Pfeiffer, investigative journalist For nearly a generation, a small group of physician-researchers has directed how Lyme disease is diagnosed and treated in the United States, Europe and, as the disease spreads, Canada and Australia too.... Read More »
HHS says Wormser “has declined the invitation” to serve on Lyme panel
06
DEC
2017
The US Department of Health and Human Services today gave us a statement regarding Dr. Gary Wormser’s position on the federal Tick-Borne Diseases Working Group. According to an HHS spokesperson: “Dr. Gary Wormser has declined the invitation to serve on the Tick-Borne Disease... Read More »
Your voice has been heard–Wormser is off the federal Lyme panel
05
DEC
2017
If you go to the US Department of Health and Human Services website, you’ll see a beautiful thing. Dr. Gary Wormser’s name has been removed from the list of members of the Tick-Borne Diseases Working Group. We await word from HHS about who may be named to replace him. Presumably... Read More »
Conflicts of interest make Wormser wrong choice for Lyme panel
30
NOV
2017
Click here to sign our Change.org petition to HHS The federal Tick-Borne Disease Working Group was established by 2016’s 21st Century Cures Act. The idea was to bring together a diverse set of stakeholders, including treating physicians, researchers, patients, advocates and... Read More »
LDO achieved Gold level: Committment To Transparency