TOUCHED BY LYME: Updated Lyme disease information list
Looking to learn about Lyme disease? Start here.
Lyme Disease Information Links
www.lymefaces.com –the website of LymeDisease.org (formerly the California Lyme Disease Association) gives info about ticks, Lyme disease, co-infections, prevention, risk maps, downloadable brochures, blogs, news and events.
In addition to its website, LymeDisease.org also publishes a quarterly journal, The Lyme Times, distributed free to members. (Click here to join.) We post Lyme-related news on Facebook and Twitter and maintain a network of state-based on-line support groups. Sign up for our free email newsletters.
Dr. Burrascano’s Lyme treatment guidelines. Print out this 37-page document and highlight the parts that pertain to you. Take a copy to your doctor.
ILADS–International Lyme and Associated Diseases Society. Professional organization for doctors who treat Lyme disease. Lots of information about Lyme, including videos of educational presentations about Lyme-related topics and downloadable brochures.
Gastrointestinal manifestations of Lyme.
Psychiatric manifestations of Lyme.
Public Health Alert–monthly newspaper on Lyme and related issues. Read it free on-line.
Lyme and autism
Recommended books, articles and films:
The Beginner’s Guide to Lyme Disease, by Nicola McFadzean, ND.
The Lyme Disease Solution, by Dr. Kenneth Singleton
The Lyme Diet, by Dr. Nicola McFadzean. What to eat while healing from Lyme.
Cure Unknown: Inside the Lyme Epidemic, by Pamela Weintraub. Excellent explanation of the scientific, medical and political turmoil surrounding Lyme disease.
Insights Into Lyme Disease Treatment: 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies by Connie Strasheim. This book can be read on-line for free.
Poughkeepsie Journal’s investigative series about Lyme disease.
Under Our Skin, award-winning Lyme documentary film. Available for free viewing at Hulu.com.
Putting Lyme Behind You, 2-DVD set. Dr. Burrascano lecture, along with a panel of other Lyme-treating doctors.
Other resources:
LymeTAP.com–Lyme Testing Access Program. Financial assistance for Lyme diagnostic testing.
Info about how to save money on medical lab tests.
Needymeds.com–Financial assistance for obtaining medication. Click here for a YouTube video that explains the process.
Prescriptionhope.com–a service that helps you obtain low-cost medications.
Clinic of Angels–financial assistance for Lyme treatment
Lymelight Foundation–financial assistance for Lyme treatment for patients ages 3-25.
Free on-line book, Infusing for Lymies, lots of information about PICC lines and IV drugs.
Filing for disability benefits when you have Lyme.
Financial assistance not related to Lyme disease:
Benefits.gov–State-by-state listing of benefit programs such as food stamps, energy assistance, Medicaid, etc.
Getting by on a limited budget–survival guide put together by LymeUnderground website.
Outside of the United States:
Canadian Lyme Disease Foundation
BADA-UK (Borreliosis and Associated Diseases Awareness UK)
Lyme Disease Action (UK)
Lyme Disease Association of Australia
Karl McManus Foundation (Australia)
AussieLyme (on-line support group)
Deutsche Lyme Borreliose Hilfe
Onlyme-aktion.org (Germany)
We would appreciate it very much, if you could add our charity organisation to your “Outside of the United States List”. We give Lyme Disease sufferers a voice in Germany and we are currently organizing worldwide Lyme protest activities for Germany in 2013. Thank you! 🙂
OnLyme-Aktion.org
Action alliance against tick borne infections Germany
http://www.onlyme-aktion.org
http://www.facebook.com/OnLymeAktion.org
Thanks for letting us know!